Showing posts with label working and MS. Show all posts
Showing posts with label working and MS. Show all posts

January 5, 2012

Word Salad, Or gazing through a diver's mask...

The other night I headed out for dinner with some friends despite my feeling of overwhelming fatigue after the holiday. I was glad I had a sweetie to drive me because for most of the evening I felt as if I was wearing a diver's mask - one of those ones where you can just see out a tiny glass screen, while the rest of your head is surrounded with copper. I couldn't understand my voice level - I was sure I was shouting and kept trying to bring my voice down. I have no memory about our conversation; I barely remember what we ate except that it was delicious and so is stuck in my sensory memory. All the time I spoke I felt like I'd been heavily into the wine - my mouth needed thought to form words and they seemed to come out mushy and drunken.  Muscles for speech were sluggish and sullen.
We staggered home - me tacking heavily to the right and left (again, thank heavens I wasn't driving) and I fell into bed to sleep for 12 hours straight.
It's probably the worst I've been cognitively for some time, and reminded me of how I felt after a couple of days at work. It amazes me I was even able to show up. Small wonder I seemed like an idiot to others, or a grump, or a bitch. Who knew what my voice was doing? Or my mouth? I certainly didn't. I feel like I should apologize to everyone.

July 20, 2010

Well, shoot.

So here I am exercising like a mad fiend, enjoying feeling my body react like a healthy person's would, enjoying the freedom of being able to walk a bit without having to think about it....
Yeah, it's been hot, but I've tried to keep cool, well hydrated, reasonable about activity.
And then it hit me - today - the awful fatigue.  It's been creeping up on me the last few days - I've been feeling more of the "nah, don't wanna"s and fewer of the "let's go!"s.  I've been crashing asleep in mid sentence and snoring the whole night through. I've noticed a sluggishness in getting up the last two days.
But today - the wall.  I dragged myself to my class this AM, worked blindly through it, came home, and too tired to eat, collapsed onto the sofa and slept the day away.  I'm still exhausted, since the joy of the MS fatigue thing is that it doesn't get better even after sleep.
I'm frustrated. And fed up. And feeling that same old sense of loss that comes whenever I am reminded that things just don't work properly in my body anymore.
And I'm reminded about why I am not at work. This fatigue was a daily thing when I was working full-time.  I was in a fog almost all the time, barely conscious, unable to remember what happened or went on, dragging myself from coffee to coffee to coffee to coffee.  And when I'm so tired, I can't think straight.  It's like I'm looking out through a tunnel - my vision blurs, my hearing seems less effective, I feel locked in to my interior.
It's a reminder, not a welcome one, but a reminder nonetheless. Life has changed forever.
Now to rest and heal and get myself back on track again....