I truly hate being at the beck and call of the disability folks. Generally, they have been kind, relatively friendly, and caring. But they can turn on a dime and I find it terrifying, especially with this disease and its changeability.
Lately I get the feeling they think I am malingering. And it terrifies me. They can pull my payments anytime they choose and I am out on the street. Literally.
I'd write more, but it's just too damn upsetting to think about.
Nothing like having a progressive, life changing disease that isn't QUITE enough to make me be considered as disabled. Because SOME days I can move and think.
1 comment:
I understand. I have lupus. You can't see it so it must not exist. At least that's the way we are often treated.
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