May 25, 2010

feeling growly

I truly hate being at the beck and call of the disability folks.  Generally, they have been kind, relatively friendly, and caring. But they can turn on a dime and I find it terrifying, especially with this disease and its changeability.
Lately I get the feeling they think I am malingering. And it terrifies me.  They can pull my payments anytime they choose and I am out on the street. Literally.
I'd write more, but it's just too damn upsetting to think about.
Nothing like having a progressive, life changing disease that isn't QUITE enough to make me be considered as disabled. Because SOME days I can move and think.

1 comment:

Anonymous said...

I understand. I have lupus. You can't see it so it must not exist. At least that's the way we are often treated.