And then I saw this today and I am mad again. Once again, the "recommendations" are merely a list of things that go wrong in MS, and the recommendation to "Talk to your loved one".
OF COURSE it is important to talk to your partner (if you have one, which I don't and let me say that dating with MS is another whole ball of wax), but just talking about it won't help the problem. My experience in talking with neurologists and others about this is that they toss blue pills and stuff at men (lest their threatened penises get all worried) but provide nothing in the way of help for women other than a bottle of lube, which, face it, is more about the man than the woman.
It's so frustrating! Lately I've gone all completely numb again and I am cheerfully considering a cat as a life partner cos I have no reason to think about anything else, and yet I know there is no one in my health care circle who can help me.
So I'm off to find another co-author and research this myself and then share what I find out. Cos if you're out there with MS and want a little physical affection, you are alone at the moment.
|from the inimitable Despair.com|
Here's the OH SO HELPFUL article.
- Decreased sex drive
- Altered genital sensations (numbness, pain, increased sensitivity)
- Difficulty or inability to maintain erection
- Decreased vaginal lubrication
- Decreased vaginal muscle tone
- Ejaculation difficulty
- Problems having an orgasm
- Fatigue can suppress sexual desire
- Spasticity can interfere with sexual positioning or cause pain
- Sensory changes can make physical contact uncomfortable.
Psychological Impact of Multiple Sclerosis on Sex
- Performance anxiety
- Changes in self-image or body image as a result of disability