Showing posts with label music. Show all posts
Showing posts with label music. Show all posts

November 29, 2023

Music and MS, or feeling anhedonic, anyone?






Apparently there's a term for people who don't like music. They are called "musical anhedonic" - which seems a boring and over explanatory term. Anhedonia means lack of joy or pleasure from life's experiences, and I don't think that accurately represents my feelings about music now.

In this article, Michel Faber tells us that Nabokov didn't like music, writing: 

Vladimir Nabokov reflected: “Music, I regret to say, affects me merely as an arbitrary succes­sion of more or less irritating sounds.”

That's a bit like my experience listening to music. It's an unfunny part of my MS progression that music is often completely overwhelming to me. I find myself avoiding it, which makes me sad. For years I've played instruments, sung in choirs, attended concerts. Wallowed in music over the holiday season.

Now, though, I know to be cautious. Listening to music can completely exhaust me. It makes me cry, setting off my unreliable emotional response. It makes me have an increase in symptoms, spasms, pain. It does something in my irritated brain.

I don't see this much in the MS literature, but perhaps it goes with the general overwhelmingness of much sensory input - it's like my brain acts like a clogged drain, and if there's a whole sink of stuff trying to get in, the pipes back up and eventually the water overflows. I get a similar response in crowds and if too much is going on visually around me. Even touring Cape Breton during one of its spectacular autumn displays of colour can knock me out.

It's another thing that's hard to explain to friends of the non-MS variety. I used to love going to concerts. I can attend, but I pay for this with days of recovery. Nasty recovery.

So annoying.

But I still try. I do adore the sound of a bassoon, or the trill of a piccolo or even a good bass drum line to rock me forward into action. But it's a bit like burning my hand on a stove - I know it is going to hurt me. So I pick my exposures carefully, which makes me seem like a neurotic.

Ah well. I suppose, as with chocolate, I can try small doses and adjust as I respond. Maybe I should try those new earplugs that minimize sound...but then would I hear the heart-soaring crescendos of Beethoven, the arias of Freddy Mercury, the tiny sounds at the start of songs that draw you in? Only way to know is to try, I suppose.

And at least it gives me permission to shut off "All I want for Christmas is You!" with extreme prejudice...


March 21, 2009

Dreaming of dancing


In the morning, I lie in bed, listening to a radio station that plays a lot of my favorite tunes. I'm curled up under my covers, which I can't feel touching me, in a comfy viscoelastic mattress pad, which I can't sense. My body, weightless from lack of sensation, feels like air. In my mind, I start to dance - wild, Flashdance like pirouettes of grace and charm, spinning effortlessly, kicking my legs to impossible heights, twirling twirling, hair flowing outward, my neck supple and smooth, articulating my steps.
Today, I am totally light, airy, purged of the ropes that tie me to this earth. I spin and twirl for several songs, then stretch.
Time to start another day. I creak to a standing position, wincing with pain, lurching to my favored left side where my brain sends me regularly, grabbing the wall for support as I pull myself, crablike, down the hallway.
But in my mind, if I close my eyes, I can still see myself dancing, spinning, filled with forgotten joy of movement. I can't help but smile.